Info & Resources

We are not medical professionals and any health related questions you have should be directed to your doctor or other medical professional.  The information we provide on these pages is offered as a resource only and is intended to help patients and their family familiarize themselves with the different options or potential limitations in their choices when discussing what is the best option for them with their doctor. 
  1. Primary Ciliary Dyskinesia
    Primary ciliary dyskinesia (PCD) is a progressive disorder affecting organ systems that rely on ciliary activity for proper function.
  2. Bronchiectasis
    Bronchiectasis is a condition in which damage to the airways causes them to thicken, widen, loose their elasticity and become scarred.
  3. Oxygen
    There is a lot to know about going on oxygen. Doing some research ahead of time will leave you better prepared for what to expect.
  4. Lungs
    Learn about pulmonary function tests.
  5. Rare Diseases
    A rare disease is defined in the United States as a diesease that affects less than 200,000 people. There are currently about 7000 identified rare diseases affecting 30 million Americans.
  6. Lung Transplant
    The US averages about 1,500 lung transplants per year. Lung transplants represent 3% of all organ transplants performed worldwide each year.